Dementia in the House is a new podcast featuring brief (three to 15-minute) conversations with physicians, research scientists, family members, colleagues, attorneys, social workers, helpline coordinators, hospice nurses, end-of-life experts, patients, and anyone else who might have an interesting story, innovative solution, or fresh perspective.
- Episode 1 —Susan Disney Lord, granddaughter of Roy O. Disney (Walt’s brother), and daughter of Roy E. and Patricia Disney, shares details of her mother’s battle with Alzheimer’s disease, and her commitment to the board of Alzheimer’s Los Angeles (9:15):
- Episode 2 — Behavioral neurologist Tiffany Chow, M.D. explains the global clinical trials of USC’s Alzheimer’s Therapeutic Research Institute (3:53):
- Episode 3 — Nora Rahimian is the helpline coordinator at Alzheimer’s Los Angeles. Here’s how she responds to people calling for advice and compassion (6:00):
Episode 4 — It’s easy to go along with a dementia patient’s alternative universe — until statements become allegations and ideas turn frightening and painful. On several occasions, my husband accused my son of stealing personal items. My father believed people were breaking into the house in the middle of night, and thought his wife was having an affair with one of his closest friends. What’s the most effective way to handle these situations? Behavioral neurologist Tiffany Chow offers suggestions that begin with doing whatever you can to help the patient feel safe, loved, happy, and healthy (please note: we’re not saying it’s easy!) 8:00:
Music: Mahalo to ukulele virtuoso Jake Shimabakuro for granting permission to use his song “Making a Perfect Yesterday” for these podcasts and videos. Be sure to check out the entire album, entitled Dragon.
…and maybe singing karaoke and getting coffee
“Scientists in Cars Talking about Brain Illness” is a video series inspired by Jerry Seinfeld’s Comedians in Cars Getting Coffee (Netflix) and James Corden’s “Carpool Karaoke” on the Late Late Show (CBS). You’re right: this won’t be as funny.
Episode 1: A wide-ranging conversation about dementia, Alzheimer’s disease, Lewy body dementia, Robin Williams, Parkinson’s disease and Parkinsonism (what’s the difference?), and Frontotemporal dementia with behavioral neurologist Tiffany Chow, M.D.
Please go easy on us. We’re doing the best we can without celebrities, a support crew, and stops for coffee in hip cafes!
Featuring Jake Shimabukuro’s “Making a Perfect Yesterday,” “Somewhere Over the Rainbow,” by Israel Kamakawiwo’ole, and Dr. Chow playing “Rainbow Connection” on her ukulele.
Rainbows and dementia. We’re determined to find hope and humor in it all.
Managing Frontotemporal Dementia Through Caregiver Support
Tiffany Chow, M.D. gave this talk, which includes random clips of me, to a group of neurologists. One special note to physicians in this presentation: If we talk about our relationship with you, we don’t expect you to become a marriage counselor. We’re trying to illustrate how our loved one has changed, and why it affects every aspect of our lives. Yes, this was a response to personal experience in a doctor’s office.
Share your ideas for future podcasts or videos: